95 Holt Road Marietta, GA 30068
service then food and visiting
Thursday, October 1, 2015
Wednesday, September 23, 2015
mom
My aunt and uncle are each going separately to see mom every other day and they both are in constant contact with her doctors to find out the best treatments so she can come home sooner. Mom is still doing hyperbaric chamber every week day. Dialysis 3 days a week.
Friday, September 18, 2015
mom
So mom has peritonitis which is an infection in the kidneys. She got a new port today in her chest to do hemodialysis instead of the peritoneal dialysis that she has been doing. She is on antibiotics for the infection. She is responding well to the antibiotics.
Thursday, September 17, 2015
moved
mom is being moved back to the renal floor because the rehab floor isn't taking good care of her.
Tuesday, September 15, 2015
Mom
Infection from dialysis so stomach cramping given antibiotics and pain meds hope to clear up tomorrow had to be careful about pains meds so BP didn't go low watching her should be ok
Friday, September 4, 2015
Sunday, August 30, 2015
Miss her
So when you miss someone you miss them all the time but some days that feeling of missing them comes on so fast that you don't have a second to prepare and you just start bawling in the shower. That's how I feel today.
Thursday, August 27, 2015
No new news on mom
Mom is still in the hospital she is doing rehab its slow because she is slow she will be starting back on the hyperbaric chamber hopefully on Monday. If you able please go see my mom she needs and wants visitors desperately.
Thank you
Meghan
Thank you
Meghan
Saturday, August 22, 2015
Dark skin tone
Now the dark skin tone on mom's calves is caused by the caliciphylaxis. It will go away but it is a slow process. The doctors are seeing slow improvement with the hyperbaric chamber for the caliciphylaxis. She will be moved to the rehabilitation floor today. Thank you for all the prayers and well wishes.
Meghan
Friday, August 21, 2015
Updates
Mom will be moved possibly tomorrow am to the rehabilitation floor at Emory Midtown. She will be there approximately 25 days. Thank you for all the support and prayers.
Meghan
Meghan
Thursday, August 20, 2015
More news
Kidney doctor saw mom today and said that she needs to eat smaller and more meals to get rid of bile. Not sure how that will happen since the hospital only does 3 meals a day. For today that is all.
Meghan
Meghan
Wednesday, August 19, 2015
Welcome
Welcome all this is going to be a blog about my mom Phia and her kidney disease and all her recent issues with this disease. So let's get started, sometime in March of 2015 my mom was diagnosed with Rapidly Progressive Glomerulonephritis this is an autoimmune disease. It means that her kidneys very quickly fail which they did in about 3 months. Since May she has been doing dialysis either at the clinic or at home. In May she went into the hospital the first time because her levels got very bad, so they admitted her. She started dialysis while she was in the hospital. In late May early June she began dialysis at home. She has been doing very well on the dialysis. Her first treatment of dialysis she began having pain in her calves and the doctors couldn't explain why. They said it probably was a minor side effect to the dialysis or because of something else. They didn't give us any concrete answers.
So fast forward to the last 2 weeks of July my mom began to have difficulty walking on her own. She fell some, never hurt herself. Over the next 2 weeks she began needing my help to walk and get around because the pain was unbearable for her. She decided to go see a neurologist hoping that maybe he could give an answer to the pain, he said she had neuropathy. He gave her samples of gabapentin which is a very strong pain medication which you should transition slowly on but, the samples were not transitioned slowly by the way they were organized. She took them for four nights; first night she took 300mg and the last night she took 1200mg. The following day she had an appointment with her kidney doctor he saw how much pain she was in, that she wasn't getting better, and that she now couldn't walk. By his observation of her he said that she was overly medicated and it was no surprise that she had fallen because she was basically heavily sedated. At that point he admitted her to the hospital.
When she arrived at the hospital they gave her pain meds and benadryl to counteract the gabapentin. About two days of her being in the hospital they decided to take a biopsy of her leg and they diagnosed her with calciphylaxis. Which is too much calcium being deposited into her skin and soft tissues which causes her to have bumps in her calves and the pain. The calciphylaxis also restricts bloodflow and oxygen to those small veins. Two days later her blood pressure bottomed out and a fever spiked they immediately admitted her to the ICU. She was there for about a week and a half because her blood pressure was not going back to normal. They put her on blood pressure meds and they helped but they tried to wean her off of them everyday but every time they were weaning her off her blood pressure went low again. Her fever went away, they tried to get her to walk but every time they brought her legs over the side of the bed her blood pressure bottomed out. She has been back on the renal (kidney) floor for about 2 weeks. Her blood is not going too low again to put her back in the ICU but its not normal enough to send her home. A recent problem of nausea has come over the last week and half for a few days she wasn't able to eat so they were giving her fluids instead. On Monday and Tuesday of last week they put her in the hyperbaric chamber so she can get oxygen to her skin and soft tissues. On Wednesday and possibly Thursday they had physical therapy come and she was able to walk down the hallway using a walker, which a huge improvement for her. She is back to vomiting up bile and they did a test a couple days later of putting a tube down her throat to her stomach and found that she had a pool of bile in her stomach. They also did another test of giving her oatmeal with radiation to see how the food travels to her stomach. There is talk about sending her either a rehab facility or the rehab floor in the hospital. Possibly in the future weeks she will be able to come home and have a home health care nurse help her with her care if necessary. Future updates will be posted when I know. I will update every day or every other day.
Meghan
So fast forward to the last 2 weeks of July my mom began to have difficulty walking on her own. She fell some, never hurt herself. Over the next 2 weeks she began needing my help to walk and get around because the pain was unbearable for her. She decided to go see a neurologist hoping that maybe he could give an answer to the pain, he said she had neuropathy. He gave her samples of gabapentin which is a very strong pain medication which you should transition slowly on but, the samples were not transitioned slowly by the way they were organized. She took them for four nights; first night she took 300mg and the last night she took 1200mg. The following day she had an appointment with her kidney doctor he saw how much pain she was in, that she wasn't getting better, and that she now couldn't walk. By his observation of her he said that she was overly medicated and it was no surprise that she had fallen because she was basically heavily sedated. At that point he admitted her to the hospital.
When she arrived at the hospital they gave her pain meds and benadryl to counteract the gabapentin. About two days of her being in the hospital they decided to take a biopsy of her leg and they diagnosed her with calciphylaxis. Which is too much calcium being deposited into her skin and soft tissues which causes her to have bumps in her calves and the pain. The calciphylaxis also restricts bloodflow and oxygen to those small veins. Two days later her blood pressure bottomed out and a fever spiked they immediately admitted her to the ICU. She was there for about a week and a half because her blood pressure was not going back to normal. They put her on blood pressure meds and they helped but they tried to wean her off of them everyday but every time they were weaning her off her blood pressure went low again. Her fever went away, they tried to get her to walk but every time they brought her legs over the side of the bed her blood pressure bottomed out. She has been back on the renal (kidney) floor for about 2 weeks. Her blood is not going too low again to put her back in the ICU but its not normal enough to send her home. A recent problem of nausea has come over the last week and half for a few days she wasn't able to eat so they were giving her fluids instead. On Monday and Tuesday of last week they put her in the hyperbaric chamber so she can get oxygen to her skin and soft tissues. On Wednesday and possibly Thursday they had physical therapy come and she was able to walk down the hallway using a walker, which a huge improvement for her. She is back to vomiting up bile and they did a test a couple days later of putting a tube down her throat to her stomach and found that she had a pool of bile in her stomach. They also did another test of giving her oatmeal with radiation to see how the food travels to her stomach. There is talk about sending her either a rehab facility or the rehab floor in the hospital. Possibly in the future weeks she will be able to come home and have a home health care nurse help her with her care if necessary. Future updates will be posted when I know. I will update every day or every other day.
Meghan
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